LEVAR BURTON, JONATHAN FRAKES, BRENT SPINER AND MORE STEP UP ALONGSIDE ‘STAR TREK’ FAMILY MEMBER JERI RYAN TO SUPPORT ‘TREK AGAINST ALS’
The cause will support Ryan’s longtime friend and stand-in, Margot Muraszkiewicz, who is struggling with an aggressive form of ALS
“Star Trek” icon Jeri Ryan has recruited several members of her “Trek” family to support another family member, Margot Muraszkiewicz. Muraszkiewicz has served as Ryan’s stand-in on “Picard” and was recently diagnosed with Bulbar Onset ALS (Amyotrophic Lateral Sclerosis, or, “Lou Gehrig’s Disease”) at 50 years old.
In a new video, Ryan – alongside “Trek” stars Levar Burton, Jonathan Frakes, Michelle Hurd, and Brent Spiner – asks friends and fans to visit TrekAgainstALS.com to help support Muraszkiewicz. Muraszkiewicz’s motor functions are rapidly declining and she will soon require round-the-clock care. Just a few months ago she was living a vital, active life but after the rapid, initial onset of symptoms her prognosis is now two to three years.
Muraszkiewicz has been an actress, dancer and stand-in for more than two decades. She first stood in for Ryan on TV series “Body of Proof” and then again with “Star Trek: Picard.” Due to her illness, Margot is now unable to work, and her friends, family and colleagues are rallying to help her comfortably live out her prognosis. Any funds above the campaign’s publicly listed goal or leftover after her passing will be given to the ALS Association’s research division.
“Margot’s joyous spirit and warm heart have also made her a dear friend over the years,” stated Ryan. “Her. “She is going through something that would be most people’s deepest fear, and she is facing it with grace and strength.”
She continued, “It is an honor for all of Margot’s friends in the ‘Trek’ community and beyond to help her through this difficult time and help the ALS Association continue its work finding a cure for this horrible disease.”
The early symptoms of ALS, a progressive neuromuscular disease, typically appear in the limbs, making simple, everyday tasks difficult. Bulbar Onset ALS, appears in approximately 25%-30% of people diagnosed with ALS and manifests in symptoms involving the face, head and neck occur such as changes in voice, breathlessness, spasms, outbursts of laughing or crying, difficulty chewing or swallowing, and more. Most people with ALS live three to five years after the first signs of the disease, however, those diagnosed with Bulbar Onset ALS typically see a faster disease progression.
Watch the video that Ryan spearheaded: https://youtu.be/qVKvfuIsB5o
Visit and donate to Trek Against ALS: http://trekagainstals.com
Share using the hashtag #TrekAgainstALS
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- I'm Al Mega the CEO of Comic Crusaders, CEO of the Undercover Capes Podcast Network, CEO of Geekery Magazine & Owner of Splintered Press (coming soon). I'm a fan of comics, cartoons and old school video games. Make sure to check out our podcasts/vidcasts and more!
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